FOCUS
How do population-based screening interventions impact the diagnostic pathway for families of traditionally underserved populations? Are there opportunities to increase retention and engagement in screening programs toward the promotion of health equity and reduction of health disparities in these populations? Grace’s research aims to address these questions by using qualitative and quantitative methods to examine the role of prescribed screening tools; engagement strategies employed by screening administrators; and the interaction of familial resilience and overall familial well-being on participation in screening programs for Autism Spectrum Disorder (ASD) among racial/ethnic minorities, immigrant populations, English Language learners, and socioeconomically disadvantaged populations. Her work aims to identify unique opportunities to create culturally-competent, family-centered care models for traditionally underserved populations participating in large-scale interventions.
MORE ABOUT GRACE
Grace is the child of immigrants, raised with limited means and limited access to health systems and services. A dual doctoral MD/PhD student, she completed the HRSA-funded Leadership Education in Neurodevelopmental Disabilities (LEND) fellowship and advocated for families of children with disabilities on Capitol Hill. Building on her life experiences, medical and research training, she aims to influence policy and clinical medicine through evidence-based research.
DISSERTATION GRANT AWARDEE — WINTER 2022
Investigating the Health and Wellness of Children with Autism Spectrum Disorder and their Families
Prevalence rates of Autism Spectrum Disorder (ASD) among children in the US have tripled since 2000. A robust and updated understanding of the health status and safety of children with ASD, of how they utilize health care, and the financial burdens the disorder places on their families, is imperative and pertinent to public policy. An in-depth understanding of these measures will inform where policy initiatives may be required to improve the health and wellness of these children and their families, and to create a more equitable health care system.
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